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Patient Advocacy.

Raising Awareness.

Providing Education.

Fighting for Change

Honouring Ruby, raising awareness of Gastroparesis & Ehler-Danlos, supporting patients and driving for change.

MISSION

To create a professional public profile, being RUBY'S VOICE, that will be the platform for Gastroparesis Awareness, Medicinal Cannabis Education and Patient Advocacy.

THE TRUST

By sharing Ruby's story we are creating an opportunity to assist patients engaging with their health professionals. A real story with devastating consequences.

GET INVOLVED

If you would like to get involved and support Ruby’s Voice, we welcome support through your time, financial contributions, or donated goods and services.

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RUBYS STORY

A bright life. A Lasting Impact

Ruby died on April 29th 2019 after a fiercely fought battle with Idiopathic Gastroparesis. This is not the outcome we could have ever expected. She showed exceptional strength and bravery and we are stepping up to the plate to continue to raise her voice.

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The following is her story and highlights the difficulties that she experienced with her care during her many many hospital admissions.

How labels of "its all in your head" and "anorexia" prevented her from being given the treatment she needed.

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It was Ruby’s desire throughout her illness to improve care for not just herself, but anyone else struggling within the medical system.

FUND RAISING

Online raffles, auctions and anniversary lunches in honour of Ruby and all patients.

DONATING

The money from our funding has gone towards more research into Gastroparesis

PATIENT CARE

Ruby's Voice mission is to create change and speak up for those who get lost in the system.

ADVOCATING

Ruby's Voice mission is to create change and speak up for those who get lost in the system.

LATEST NEWS

Stories in the media.

LATEST PODCAST

"All in her Head"

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Episode 1

"Rachel is starving to death, but doctors can't agree what’s wrong with her. In desperation her family fundraises for life-saving surgery she can only get overseas. Rachel has Ehlers-Danlos, a syndrome dividing the medical community."

PROUD SPONSORS

Ruby’s Voice Trust Research Travel Award

In 2024 Ruby's Voice Trust raised $9,999.00 enabling us to create the Ruby’s Voice Trust Research Travel award, which fulfils our goal of supporting a PhD student’s research.

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This award supported Peter Tremain, who is a highly successful PhD student, to take up a visiting studentship at the Massachusetts Institute of Technology (MIT), in Massachusetts, USA. This was an incredible opportunity, not only for Peter, but also for our research project as a whole, they were able to develop a minimally-invasive endoscopic mapping device for the stomach, to detect electrical abnormalities associated with gastroparesis. 

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Help Continue to Support Us

Your support helps us to educate, advocate and bring hope for those living with Gastroparesis and Ehler-Danlos

CONTACT US

Email: rubysvoicenz@gmail.com

Facebook:  Ruby's Voice Trust

Thank you for your message. We will get back to you as soon as we can. Have a great day!

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