Gastroparesis Survey | Ruby's Voice

1. Have you experienced any challenges in receiving appropriate medical care for your conditions due to professional bias?

2. Have you encountered skepticism or disbelief from healthcare professionals regarding the validity of your Gastroparesis and Ehlers-Danlos syndrome diagnoses?

3. Do you feel healthcare providers have minimized or dismissed your symptoms related to Gastroparesis and Ehlers-Danlos syndrome?

4. Have you experienced delays in receiving appropriate treatment due to medical professionals' lack of understanding or knowledge about your conditions?

5. Have healthcare providers ever attributed your symptoms to psychological factors rather than acknowledging the physical manifestations of Gastroparesis and Ehlers-Danlos syndrome?

6. Have you felt judged or stigmatized by healthcare professionals because of your conditions?

7. Have you encountered difficulties in getting referrals to specialists or receiving comprehensive care for your Gastroparesis and Ehlers-Danlos syndrome?

8. Do you think there is a bias in the medical community that affects the quality of care provided to individuals with Gastroparesis and Ehlers-Danlos syndrome?

9. Have you ever had to advocate for yourself excessively to ensure your medical needs related to Gastroparesis and Ehlers-Danlos syndrome were met by healthcare professionals?

10. Do you feel supported and listened to by your current healthcare team in managing your conditions?

Optional: If you would like to offer an opinion please send us an email with your thoughts to Question 11.

11. In your opinion, what steps can healthcare institutions take to address and mitigate professional bias towards patients with Gastroparesis and Ehlers-Danlos syndrome?